What is a craniofacial disorder?
A craniofacial disorder refers to an abnormality of the face and/or the head. Craniofacial differences can result from abnormal growth patterns of the face or skull, which involves soft tissue and bones. A craniofacial condition may include disfigurement brought about by birth defect, disease or trauma.
CCA Network: Winter 2012 Newsletter (PDF; 4.7 MB): Message from the executive director, friends of Jeremy, Texas mom's 5k for cca, Lily's dinner, Stand up to bullying, Chocolate festival, Ryan's road, Holiday parties.
Approximately 1 in 4 pregnant women carry GBS, the most common cause of life-threatening infections in newborns according to the U.S. Centers for Disease Control and Prevention (CDC). GBS can also infect babies during pregnancy and the first few months of life.
GBS can cause babies to be miscarried, stillborn, born prematurely, become very sick, have lifelong handicaps, or die.
Fortunately there are ways to help protect babies from Group B Strep. This website contains resources for you to learn more about GBS and help prevent its devastating effects.
Hemochromatosis is a disorder that interferes with the body's ability to break down iron, and results in too much iron being absorbed from the gastrointestinal tract.
Hemochromatosis is usually hereditary. It takes two defective genes, one from each parent, to cause hemochromatosis. Siblings of those affected have a 25% chance of getting it. Both parents must be carriers of the defective gene, which means that a child of a person with hemochromatosis is less likely to have it than the person's siblings are.
...more than one million Americans have the genes...
Don't let disease sneak up on you. Get tested before serum ferritin reaches the danger zone!
Phelan-McDermid Syndrome is a rare genetic anomaly caused by the absence of genes at the tip of the long-arm of the 22nd chromosome.
Most exhibit moderate to severe physical and intellectual developmental delays and lack the ability to communicate easily. Many have delayed speech, problems with eating, sleeping and emotional stability.
Most, but not all, children with this syndrome will have a number of characteristic features:
Newborns usually have floppy muscle tone (hypotonia)
Newborns/Infants have a difficult time drinking from the bottle/breast - fluids tend to leak out of their mouths making for a messy and wet meal
Delayed in sitting up, rolling over, crawling and walking
Delayed or absent speech
Normal growth or may be tall for age
Facial features are fairly subtle and may not be recognized by your doctor: long head shape (dolicocephaly), puffiness around the eyes, long eyelashes, droopy eyelids, puffy cheeks and large ears.
Physical features: large, fleshy hands, underdeveloped toenails that may peel off effortlessly and the inability to perspire, causing overheating readily.
The USDA TARGET Center's mission is to– Ensure that all USDA employees have safe and equal access to electronic and information technology by assessing, educating, and advocating for the integration of assistive technology and worksite accommodations.
The Disability Emphasis Program goals are to:
For More Information Contact:
PIA Disability Program Manager
USDA Natural Reources Conservation Service (NRCS)
Pacific Islands Area State Office
P.O. Box 50004
Honolulu, Hawaii 96850-0050
USDA is an equal opportunity employer and provider..